Caregivers are human too ♥️
Well, I spent 17 years as my moms caregiver but, on October 23, 2019 that role ended for me and I took over the role of grieving daughter. That caregiver break didn’t last very long though because on March 10, 2020 I was handed this role again but, this time with my wonderful husband and with a diagnosis of throat cancer that’s grown. I’ve been a caregiver for a long time and I’d love to share some of my experiences with you all! So let’s get to it! The good, the bad and the ugly!
I’ve had many jobs in my life but, the job of caregiver is the one I found to be most challenging. Let me tell you why. You’ve been handed a person that’s ill. This is usually a loved one of your very own. So right off the bat you’re emotionally invested. You’ve been handed EVERY symptom that they have and you have to help manage it. That’s usually done by reaching out to Doctors and advocating for the person you’re caring for. Sometimes it’s so frustrating! Countless calls to the Dr’s office with no return calls to you. A anxious and sick patient looking for answers, family members that are scared and want answer and naturally BLAME you because you’re the caregiver and believe me..some of the family can be brutal when playing the “blame game”! They don’t consider that you’re just as scared as everyone else because they don’t view you as human..I mean you ARE the “caregiver”!
This is something I use often when I’m being attacked by a family member because they aren’t getting the answers they want in the time frame they want. If you want it done faster then maybe YOU should step up because I know that I’m doing everything I can to do a good job. I am human, I have feelings too, I’m frustrated because I’m not getting a call back from Dr’s and probably even more than you because I’m the one telling the sick person that I don’t have answers, yet!
When we take on the role of Caregivers people tend to put you in a superhero 🦸♀️ outfit and totally forget that YOU ARE HUMAN TOO!
During the 17 years of being my moms caregiver I learned a lot. Number 1 is Don’t forget to take care of yourself! A caregivers coffee break, a short walk, a small meal, alone time, a conversation with a friend or just mentally disconnecting for a little bit while your sick one is sleeping or when someone’s willing to sit with them for a little while. You are NOT a Superhero so don’t put unreal expectations on yourself because I promise you that you will let yourself down! We are only human and self care is so important! If someone thinks you’re selfish because you are taking time for self care then offer them the job of full time caregiver. Period!
When you take on the role of caregiver you take on many people. Let me share with you the people I’m expected to keep informed since my husbands diagnosis. I’ve got a group text going with all 7 children. 6 children are ours and 1 is a Andrea, my sons girlfriend. 2 of them are RN’s and one is a LPN! That’s ALL I’m going to say about that! When I have new information I send a group text and they can ask any questions in the text. I might not be able to answer it right then but, I will get to it.
The 2nd group of people that I’m expected to keep informed is Michaels siblings in Michigan and there’s 4 of them. I do my very best to keep eveyone informed but, I’m human and Michael is my priority. Period!
Being a caregiver is a special job and not a job to be taken lightly. Someone’s life is in your hands. That being said it’s still so important to take it easy on yourself. At the end of the day when you’re ready to drop because you’re physically and mentally exhausted...it’s alright. Catch up on that sleep but, before you so please make sure you eat! I know with all the work I do in a day I rip through Calories. I go and go and go and go! So eat and then get that sleep!
You’re important! You’re so important and don’t lose sight of that. Someone is sick and they need extra attention, you’ve got to reach out to keep eveyone informed but, you matter too!
You will have your days! Remember when we talked about being human. Yup, it’s true and caregivers have bad days too! Just remember that tomorrow is another day! Can I get a “AMEN”? That’s what keeps me going on my bad days. I’m not hard on myself though. I reach out to my friends. My friend RTB Dutchy just helped me through a bad day yesterday and that’s alright. I’m not weak..I’m human! Thank you Dutchy 😘
This is for ALL Caregivers! I want you to know that I appreciate you! From one caregiver to another..I get it. If I’ve got a moment I’m also here for you! If I don’t have a moment then please refere to this poem. It’s beautiful and true ♥️
There’s going to be peaks and there’s going to be valleys in this journey but, just ride them out and never lose sight of no matter what kind of day you’re having, it’s a blessing because it’s another day!
I felt compelled to write this today because I know I’m not the only caregiver out here and maybe there’s a brand new caregiver out there and I want you to know that you’re not alone. It might feel it but you’re not.
The last thing I want to share with you is this. If you’re the caregiver of someone and one of the people that you are keeping informed decides it’s alright to mentally abuse you, dismiss them! It’s alright and I’ve done it myself! I am not here to be anyone’s whipping post, I’m not here to be mentally abused, I’m not here as someone’s personal informant. I have people in my circle that feel entitled to be told about everything...separately! NO, just NO and that’s alright! I don’t have time for that. When they decide to stop acting entitled then they can communicate in the group message. Nobody and I mean nobody is entitled to drag you away from your loved one. You’re scared too. You’re sensitive too but, you’re pushing it aside to do the very best you can. Don’t let anyone put unreal expectations on you. Don’t put unrealistic expectations on yourself and if someone competent offers you a break..take it. It mean’s you’re taking care of “YOU” and “YOU” are so important too! Keep up the great job! I’m rooting for YOU ❤️
You can follow me on Twitter @PattyB09952203